So what does this mean? Well first off, Josh has had no symptoms of this new growth. He hasn't had a seizure in almost two years (knock on wood) and in the past two months has only had one or two headaches. Nothing crazy. No tall tail signs, so these results were a huge slap in the face. Dr. T offered us three options.
- Do temozolomide. This was the chemotherapy he did for a year last year. It worked really well but Dr. T would want to up his dose.
- Do another form of chemotherapy (I don't remember the name and googling it brings me to all types of prescription names). This one would be in a high dose, probably terrible side effects and it also comes with a very strict diet. Super strict. Like annoyingly strict.
- Drug trial at John Hopkins. Suprise! My husband has a very rare brain cancer. Like rare of the rare, so he never qualifies for a drug trial and actually this trial isn't for the particular cancer it's more for the mutation in said cancer. We don't know if he fully qualified or even what stage the drug trial is in but Dr. T seems hopeful.
I am a firm believer that there is a reason for everything. Right now, I haven't figured out what that reason is. I have no idea why life keeps serving us shit sandwiches and it's something I may never know. But what I do know is that I am thankful we caught it quick (we were actually going to blow off this MRI and just get it done once we were down in Florida) and I am thankful that there are options. Right now, Josh and I are still processing everything. Regardless of what treatment we choose, we will be staying up here way longer than what we intended. Does it suck ? Terribly. But we, like always, try to make the best of the situation. That's all we can do.
However, we do ask all of you to continue to pray for Josh and our family. My husband is a fighter and he's stubborn as hell so I know he won't go down without a fight. This a speed bump in the road and just like last time, I know he will kick ass.